MEDIA BIOS & IMAGES
Janie Reade:
Rare Disease Advocate and Author, More of Everything
Janie Reade is a geneticist, a mom of three young adult men, and leader in the patient advocacy group for her middle son’s debilitating rare disease. She is the author of More of Everything, where she shares two decades of her unusual parent-child relationship with her affected son. Though she wanted to find a cure for him, Janie had to find a way to choose the thing she never wanted, which ultimately was what her family truly needed.
The two images below may be downloaded and used for promotional purposes.
TOP: personal photo with PRISMA filter
BOTTOM: Place-It mockup of artwork (owned by me) for paperback cover of my book.
![image_6487327 prisma filter JR and Joey hold hands red coat gray backpack](https://janiereade.com/wp-content/uploads/image_6487327-450x600.jpg)
![hard-cover-book-mockup-featuring-a-customizable-background-732-el1 More of Everything paperback cover](https://janiereade.com/wp-content/uploads/bb-plugin/cache/hard-cover-book-mockup-featuring-a-customizable-background-732-el1-600x400-portrait-6a5455083051fde232e710cd47c91566-7suorepdag5m.png)
MORE OF JR:
PODCASTS & WEBINARS
![Once-Upon-A-Gene Once Upon A Gene logo](https://janiereade.com/wp-content/uploads/Once-Upon-A-Gene.png)
Episode #184: MORE of EVERYTHING
with Syngap mom Janie Reade
The incandescent Effie Parks interviews JR about her book, More of Everything. They discuss the Rare journey with kiddos, family, and even themselves.
Check out Effie Parks at her website.
![8087930034773612045 once upon a gene podcast with Janie Reade graphic](https://janiereade.com/wp-content/uploads/bb-plugin/cache/8087930034773612045-250x250-square-43dd07f515ba01c6838a81c74f25d769-0wt92ldybpz4.jpg)
![Child-Life-On-Call Child Life On Call logo with partial rainbow](https://janiereade.com/wp-content/uploads/Child-Life-On-Call.png)
Episode 185:
JR's STORY — A son with a rare disease.
Check out Katie Taylor at her website.
![Picture2 child life on call mission statement and email](https://janiereade.com/wp-content/uploads/Picture2.png)
Syngap Research Fund Webinar #67
More of Everything Book Launch Presentation
Hear JR's perspective on parenting, and feel a connection to the rare disease community.
![syngap-research-fund-logo_circle-full SynGAP Research Fund logo, round, Collaboration, Transparency, Urgency Purple Green and Blue](https://janiereade.com/wp-content/uploads/syngap-research-fund-logo_circle-full.png)
MORE OF JR:
PODCASTS & WEBINARS
![Once-Upon-A-Gene Once Upon A Gene logo](https://janiereade.com/wp-content/uploads/Once-Upon-A-Gene.png)
Episode #184:
MORE of EVERYTHING
with Syngap mom Janie Reade
Effie Parks interviews JR about her book.
Check out Effie Parks at her website.
![8087930034773612045 once upon a gene podcast with Janie Reade graphic](https://janiereade.com/wp-content/uploads/bb-plugin/cache/8087930034773612045-250x250-square-43dd07f515ba01c6838a81c74f25d769-0lrnj7qv61sw.jpg)
![Child-Life-On-Call Child Life On Call logo with partial rainbow](https://janiereade.com/wp-content/uploads/Child-Life-On-Call.png)
Episode 185:
JR's STORY — A son with a rare disease.
Check out Katie Taylor at her website.
![Picture2 child life on call mission statement and email](https://janiereade.com/wp-content/uploads/Picture2.png)
Syngap Research Fund Webinar #67
More of Everything Book Launch Presentation
Hear JR's perspective on parenting, and feel a connection to the rare disease community.
![syngap-research-fund-logo_circle-full SynGAP Research Fund logo, round, Collaboration, Transparency, Urgency Purple Green and Blue](https://janiereade.com/wp-content/uploads/bb-plugin/cache/syngap-research-fund-logo_circle-full-circle-4ac0f9e8837a23f336ab7cb68e486bbd-nk75fbe12jm8.png)