MEDIA BIOS & IMAGES
Janie Reade:
Rare Disease Advocate and Author, More of Everything
Janie Reade is a geneticist, a mom of three young adult men, and leader in the patient advocacy group for her middle son’s debilitating rare disease. She is the author of More of Everything, where she shares two decades of her unusual parent-child relationship with her affected son. Though she wanted to find a cure for him, Janie had to find a way to choose the thing she never wanted, which ultimately was what her family truly needed.
The two images below may be downloaded and used for promotional purposes.
TOP: personal photo with PRISMA filter
BOTTOM: Place-It mockup of artwork (owned by me) for paperback cover of my book.
MORE OF JR:
PODCASTS & WEBINARS
Episode #184: MORE of EVERYTHING
with Syngap mom Janie Reade
The incandescent Effie Parks interviews JR about her book, More of Everything. They discuss the Rare journey with kiddos, family, and even themselves.
Check out Effie Parks at her website.
Episode 185:
JR's STORY — A son with a rare disease.
Check out Katie Taylor at her website.
Syngap Research Fund Webinar #67
More of Everything Book Launch Presentation
Hear JR's perspective on parenting, and feel a connection to the rare disease community.
MORE OF JR:
PODCASTS & WEBINARS
Episode #184:
MORE of EVERYTHING
with Syngap mom Janie Reade
Effie Parks interviews JR about her book.
Check out Effie Parks at her website.
Episode 185:
JR's STORY — A son with a rare disease.
Check out Katie Taylor at her website.
Syngap Research Fund Webinar #67
More of Everything Book Launch Presentation
Hear JR's perspective on parenting, and feel a connection to the rare disease community.
